Quick Update

This will be a quick update but start checking back often to see how Tyler is doing.  Also you can join him on Facebook here or Caring Bridge here.  You have to sign up for the Caring Bridge site but they do not give out your info so it's safe and secure.

Tyler has been in and out of doctor appointments for the past two weeks. They have checked every molecule of the kid's body and found for the most part he is very healthy other than the Fanconi Anemia.  He has the day off tomorrow and then he will check into the hospital on Thursday.  They all will be staying at the Ronald McDonald House as soon as they can get a room.  In the mean time they will get a hotel room for a few weeks if necessary so they can be within the 50 mile limit from the hospital.  Either Mike or Wendy will be at the hospital 24/7 with Tyler and the other parent will be with the little ones the rest of the time.  It is going to be a juggling act for a while but I'm sure things will settle into a routine when the actual transplant has happened.  That is scheduled for November 21.  They will be using cord blood instead of a live donor for the transplant.  It is my understanding that using cord blood eliminates rejection so that is one good thing.  Also tho it takes a little longer before it starts making new marrow.  So Thursday is check in to the hospital day and then they do radiation and then a few days of chemo before the actual transplant takes place.

I will be updating here and also Wendy will be doing updates daily on Facebook and Caring Bridge to a lesser degree.  Jeff has moved back into the household so that he can take care of the stove and outside animals.  He will be here for me also.  I am able these days to get myself food and drinks but I can't put wood in the stove.  The temp right now is 22 and it's 6:30PM so as you can see it is getting colder here.  There is no snow yet but there will be soon.  Jeff will be here to take care of clearing the porch and other areas where I have to go to get to the van and go to dialysis.  It's also safer for me to have someone here in the house in case I fall or do something else stupid.  :)  

Keep check back here everyone.  Also please say prayers for Tyler and the rest of my family.  This is going to be a long journey and we need all the good thoughts and well wishes you can send us.  

Love and Hugzz to all of you!!

Opps...

Well it was close but the Lakers lost to the Jazz 86-88. Like I have said you can't win them all!! It was a good game though. I have added a Widget to the blog so you can see who is playing when if you are interested.

I went to Physical Therapy yesterday. Boy did she give me a workout. My muscles are all sore today. I still did my workout this morning. The more I do the more I can do. I am trying to walk around a few steps without the walker. My balance sucks but I can go 2 or 3 steps. And I haven't fallen down which is a good thing.

Blogging Beautification

I have spent the last 2 hours making a few changes to this blog. I hope it looks prettier than it did. As I get stronger and can spend more time I will add more pretties.

I have let a few of my groups know that I am getting better and I have even gone back to mail in one of them. I want to take this time to Thank everyone who prayed for me and who kept me in their thoughts. I have come to discover that prayer is a very powerful healer. I don't think I would be here without the love and the prayers said for me.

This is the everyday stuff

On my journey thru life I have hit a few snags. This blog will give you some insite into the snags.

It's funny how things always come full circle. I am back after a 6 week "vacation". Most of my vacation was spent in a drug induced coma. You see...I got a really really bad case of pnuemonia. I has litlerally on deaths door. I was placed on a ventilator. I have absolutely no memory of any of this. I am not telling any of you this for sympathy. It is simply another way for me to come to terms with what happened and to continue to deal with and heal from it.

At the beginning of March I got a cold....a bad one. By the 6th I was not able to even move...I couldn't breath. My daughter took me to the doctor again and they sent me to St Paul to the big hospital. The doctor said without the ventilator I would not have lived thru the night. Twelve days later the doctor started bring me out of the coma. I didn't know where I was or what had happened. It took another few days before I even could associate a date with my world. By the 25th I had a better grip on the time- space reality. But I literally lost 3 weeks of my life. It was a very strange feeling. More later.